#helping loved ones with FND?

1 messages · Page 1 of 1 (latest)

pure wedge
#

my brother was diagnosed with FND a little while ago after he had a non-epileptic seizure. I'm trying to get diagnosed with hEDS so I know about chronic pain but I'm not sure how I can support him through other symptoms. he hasn't had any paralysis that I know of, just the seizures and some mild facial tics (I've only ever seen one of his seizures and it was just an absence). but also I don't see him a lot (even though we live together) because our schedules just don't overlap at all and we're barely ever in the house at the same time. so I don't know if he has other symptoms that I just missed because I don't get as many chances to talk to him. are there ways I can support him?

rocky cedar
#

This is very wholesome! 💗 I would think it varies a lot, so if you have a chance to ask him sometime it could be a good idea, if you want to ^^ here are some things that help me during functional seizures:

  • protect my head if necessary, preferably by getting a pillow rather than holding me
  • no restraint. The only potential exception is if it is needed to protect my head
  • checking the time. With functional seizures this isn't necessary, but I can be confused afterwards and want to know how long I was out. I might also want to know what happened
  • being offered water can also be nice after a seizure, but I might not be able to drink before recovering more
  • trying to stay calm. This one is most important for me. Don't bring up any difficult or complex topics, and try not to freak out.

Just being understanding, staying calm and giving time can already be so helpful <33

lunar forge
# pure wedge my brother was diagnosed with FND a little while ago after he had a non-epilepti...

I was also diagnosed with FND after a none-epileptic seizure, but I had a vocal tic when I was younger and probably some motor tics so I probably have Tourettes Syndrome as well as functional tics, I’d say be around your brother a little more to observe things and if he has any seizures you can be there for him, all you can do is if he has a seizure make sure there’s nothing around him that could hurt or harm him, do you know if he’s had tics before? as it might be Tourettes Syndrome if not then I was told by a doctor that antidepressants can apparently ease tics, so if he can get an appointment with a doctor they might give him antidepressants to help ease it especially if they become too much for him in day to day life.