advices for seizures and fainting

[oblique marsh]

Does someone have tricks for seizures or fainting cause those two last days have been horrible for me, so advices someone?

[vagrant jasper]

Oof, feel you there. It depends on what causes your seizures—mine are psychogenic, so my therapist has me doing diaphragmatic breathing / mindfulness stuff, which helps some. If it's epilepsy, you'll need medication. As far as fainting goes, a lot of things can cause that. If it's fainting simultaneous with seizures, that might be more likely to be epilepsy, I'm not sure. In my case, I just have chronic low blood pressure, and meds help me a good deal with that

[oblique marsh]

I faint many times and end up having a seizure or two per day these past times

[vagrant jasper]

Ouch, that really sucks

I fainted just the other day and unfortunately took a bad fall from it, still recoveriing

[empty carbon]

for afterwards or when i feel im going to get into a seziure or faint i get a ice pack

[oblique marsh]

Aww poor you, I hope you’ll be okay

[oblique marsh]

Yeah I’m just scared to fall on the way

[vagrant jasper]

Thanks, Ana—I'll be alright, it's not my first rodeo. Just in my 20s now as opposed to my teens, I don't bounce up again quite so quickly, haha

[oblique marsh]

Yeah 😂

[empty carbon]

yeah try setting a place up with pillows or plushies

[oblique marsh]

Good idea

[empty carbon]

yes thats what id do when i feel like that

[vagrant jasper]

Whenever I feel a seizure coming on I try to make sure I sit or lie down in a safe position, although that's hardly super creative advice, haha. I have an in-home hospital bed, so that helps

[oblique marsh]

Yeah, I don’t have this type of things but I could try and make comfy place for it

[formal basin]

Hiya! So I rarley get seizure auras, and if I do its like a minute prior, and for me I can't really word or speak when it happends, so I normally say the person whom I'm next to's name, or tug on there clothing. I would make sure to tell the others around you, in every environment, that you may faint or seize so they understand that you do, and also tell them what to do!

[vagrant jasper]

Yeah, that's good advice, June.

It helps when people know what it is, so they know not to panic and so forth

[oblique marsh]

I can’t really do that… only my boyfriend and some rare of my friends know about it… I can’t bring myself to talk about it

[formal basin]

Sometimes my friends still panic when I seize, but it helps to know what to do, and it gives them more structure when it happens

[vagrant jasper]

Yeah, it can be hard, Ana. It takes time, with these things, and you can only do what you can do. Be kind to yourself about it

[formal basin]

Trust me I understand that more than you believe, I was like that before my seizures got bad, only my sister knew, and than they became more public, I would seize at school twice a week, so others became away, and it was super stressful when it cane out of no where that I had seizures, anf than when they found out I fainted it was a double whamy

[oblique marsh]

Yeah…

[vagrant jasper]

It's none of my business, of course, but do you have any access to healthcare, at the moment?

[oblique marsh]

Tw: medication
I see my doctor from time to time to adjust my ||antidepressants|| and I have a school nurse that’s rarely at school

[vagrant jasper]

I'm glad you have something, at least. A doctor who's involved at all is at least a start

[empty carbon]

can you bring them

[oblique marsh]

I never talked about it to my doctor but maybe sometime…

[oblique marsh]

Huh?? What do you mean?

[vagrant jasper]

It would be a good idea to bring it up to your doc, when you can

I'm not sure what Anna means either, haha

I think she may've misunderstood about when you have access to your meds

[oblique marsh]

Yeah maybe…

[empty carbon]

like could you bring your meds to school nd take em there?

[oblique marsh]

Why?

I don’t think it change much

[empty carbon]

oh i thought thats what you meant since ur nurse is raeely there

[vagrant jasper]

Yeah, I think it was just a misunderstanding. I assume Ana already takes her meds on a schedule

Also you both have the same name and I don't know how I didn't realize that until now, haha

[empty carbon]

ohh my bad 😭

[empty carbon]

😭😭

[vagrant jasper]

No worries, Anna

[oblique marsh]

Yeah I have them on a schedule

[frail garnet]

GG @oblique marsh, you just advanced to level 12!

[empty carbon]

mine is Ana but i like it berter with two n’s

[vagrant jasper]

Oh, so you really have the same name, hahah

[empty carbon]

lol yes !

[oblique marsh]

My full name is Anael, Ana is just a nickname

[vagrant jasper]

Oh, cool!

That's a really rad name

[empty carbon]

i gotchu mine is anasofia all together

😭😭

[frail garnet]

GG @empty carbon, you just advanced to level 10!

[oblique marsh]

It’s from France

[vagrant jasper]

I really hope one of you has gone by the nickname BanAna, haha

[oblique marsh]

No never

But Ananas yes

It means pineapple

It’s in French

Cause banana is in English

[empty carbon]

yes i have

anna banna i get called

[oblique marsh]

That’s wonderful

I feel like Luke (is it alright if I call you that?) make some dad jokes

Make me think of my grandpa that recently passed it makes me really happy

[frail garnet]

GG @vagrant jasper, you just advanced to level 5!

[vagrant jasper]

Yeah, you can call me that, haha

And that's very sweet, Ana, thank you. My condolences about your grandpa, I recently lost a great uncle.

Anna Banana and Ananas, those are both amazing

[oblique marsh]

Aww thank you

[oblique marsh]

Thanks

[oblique marsh]

Thank you… my condolences for your great uncle

[vagrant jasper]

Thank you

[oblique marsh]

It’s normal

[vagrant jasper]

Life has its valleys. I'm always happy to provide dad jokes, though

[oblique marsh]

It’s a real pleasure to get these dad jokes, it makes me REALLY happy

[vagrant jasper]

Hi really happy, I'm Luke

[oblique marsh]

Omg that one has been used sooooo many times

[vagrant jasper]

I couldn't pass up the chance, haha

[oblique marsh]

Haha 😂

[vital rampart]

I just try to minimize triggers for my seizures, sometimes that helps me not have as many

[oblique marsh]

I have difficulty recognizing the triggers

[vital rampart]

Oh

[timid harness]

I just had a seizure at school. I was alone, with one girl in a small room. I don't exactly tell anyone about my seizures, but now my jaw is locked shut and I can't speak (Could just be my TS) and I feel like fainting. Any tips?

[umbral hill]

im so close to passing out rn and im out in public any advice

[vagrant jasper]

Sorry neither of you got any prompt tips.

[vagrant jasper]

In the long term, you should find people you can trust to tell, if only so people can know you'll be okay (and, in the long long term, hopefully you can get access to docs who can test what kind you have). In that particular scenario, having a pre-prepared card explaining the situation could help alleviate the worries of the other person present. Some people who can go nonverbal for one reason or another will learn ASL to communicate when they can't talk. There are no easy solutions, unfortunately