Neuromuscular

[obsidian elm]

Hello 🙂 I’m soon having a muscle biopsy done to determine if I have a type of neuromuscular condition. Does anyone on here have one? Mine specifically would be Myotonia Congenita, it’s rare and the doctors say if I do have it, it’s a lot more severe and abnormal presentation, they are quite puzzled lol. Was just hoping to connect with some people.

[manic jacinth]

Hii ! I’m sorry I can’t really relate as I don’t have one but I hope it’ll go ok !

[kindred latch]

GG @manic jacinth, you just advanced to level 1!

[obsidian elm]

No worries, thank you anyways!

[knotty citrus]

I'm not diagnosed with any condition, but I've never been able to hold my own body weight without my feet on the ground, my bones dislocate easily, I get injured easily, I've hit records rolling my ankle, and my arms look like noodles with how skinny and useless they are at holding anything heavy.

[obsidian elm]

Have you looked into HEDS, there is a group on here. I don’t have it and I can’t diagnosis as I am not a doctor but maybe you should look into it.