#Raynaud’ Syndrome And Beckwith-Wiedemann Syndrome
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What is the second one?
It’s basically a growth disorder where some organs in your body doesn’t grow how it normally would
I had macroglossia when I was born (an abnormally large tongue)
They had to surgically remove part of my tongue to fit in my mouth
That's crazy! Did it affect anything else?
Yes
I have hypoglycemia (low blood sugar) and my lungs are the size of a 6 year olds!
Do you need help breathing? Surely you can’t live like that. My typically sized lungs can’t keep up with me.
Also, Asthma runs in my family. I don’t have it but I get really scared sometimes when I try to think about it.