rain hill
Hey! I just wanted to share my story with you, and basically talk about my battle and recovery period. I just want you to know that there’s a community of us, who know what you’re going through. So if you ever need to chat, Feel free to talk to me.
I was diagnosed 6 years ago. When i was diagnosed, i was hopeless and discouraged. I bed-rotted for months or pushed myself too hard, cycling between the two states while feeling miserable and wiped out. My resting heart rate was in the 90s, and it’d spike to the 150s just from standing up. It was a rough time, and I only realize how rough it really was.
But slowly, things started turning around. Over 2021-2022, I went from barely managing 2k steps a day to hitting around 7k consistently. I’ve even dealt with setbacks like getting the flu and COVID in the past year… but I recovered okay each time, but it took weeks for my HRV and resting HR to settle back down, but I just trusted the process and tried to not let myself go too many days without my routine.
The game-changers for me were genuinely just walking.For the longest time, I avoided any kind of exercise because I felt ashamed, like it was “cheating” or something, and would literally just do long walks on treadmill whenever I could muster the motivation. But once I got over that, Walking and little bits of exercise slowly built up my conditioning so well that now I can lift weights 3x a week and even do real standing cardio without crashing.
On top of that, I take magnesium supplements daily, plus two 1000mg salt packets, and I salt literally everything I eat. I bump up the salt even more during my luteal phase, which has made a noticeable difference. I’ve also used a CGM to monitor and limit any blood sugar spikes, which I’ve associated with a lot of my dizziness and fatigue.
At this point, my POTS feels effectively “cured”, or at least managed to the point it almost never affects my day to day unless I drink too much or get sick..
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