A couple of months ago I was diagnosed with something called functional neurological disorder. Which is a condition where a person experiences neurological symptoms (like weakness, seizures, or movement problems) without a structural brain or body issue to explain them. It's essentially a problem with how the brain processes and sends signals, not a physical problem in the brain itself. Last year in april I had gone to national for wrestling in lowa and kept hitting my head which led to me having my first seizures April 10th 2024. I kept having them so often to the point I had to be given a nasal spray to stop them. Eventually the nasal spray didn’t work anymore causing me to go into grand mal ones. I was diagnosed with epilepsy and put on medication which made it even worse therefore causing me to have 4 or more a month. On february 4th I went unit cardiac arrest and stop breathing and cpr was started. Lucky I came back but after a week or two I had another one which cause my blood sugar to be really dangerously low. Which I had to go to denver children hospital for in order to help me. We found out that I don’t have eplisey and my neurologist was actually prescribing more than I needed. Therefore the reason why I would get so sick from my medication. Ever since finding out It won’t be a permanent thing but they don’t know why or what cause it. Is really confusing I haven’t met anyone else with this before so I’m really conflicted. It’s like being told i’m crazy and not at the same time because it’s both neurological and physiological. I would really love it if anyone else has fnd tell me more about it and how they deal with it. Since I really don’t know anyone around me who has it and I’m still trying to really understand how to feel about it.
#FND
4 messages · Page 1 of 1 (latest)
Wow, that’s.. that’s really heavy stuff
Yea it’s really is and I’m just struggling how to move forward and what to think
I'm sorry you're going through this. It sounds like you've been through a lot. And it's understandable that you're feeling conflicted and confused. Do you have any support right now?