hi, i think i have a problem. and i don’t know what is. is it POTS? it’s something else? idk.
sometimes i stand up, walk for a bit (like crossing 1-2 rooms in my house) and im literally craving air. my heart beat blows up, i feel like tembling/vibrating (idk how to say it) and almost dropping. but usually i dont.
some other times i do faint but everytime no one is seeing me, or i almost faint at the dinner table sloooowly as a baby sleeping with the forehead on the table or on the arm. usually i try so hard to fight safely against these strong feelings in my body.
but it’s fricking scary, and this happens daily, more than once a day. im scared. and idk what it is.
sometimes i do too have pain located, or generally, or feeling of ||“being on fire”||. like i feel a fire inside me that burns my skin under, and sometimes i feel like being under really hot sunny day without protection.
maybe some other symptoms that i dont remember. now, what should i do? im already doing some appointments for TS, ADHD and OCPD (ocd). idk what to do other than that.
i mean, do i have to search something specific? i dont know much expect for pots and a lil of fnd and pandas because of zara beth and evie meg. but im not an expert, at all, idk what could be. and im scared. i need a feedback. anyone could please help or interact? sincerely, thank you -Leo
#cardiac problem? someone could help / interact?
unborn ore
barren lodgeBOT
That sounds a lot like we experience our POTS
Leo |☀ Solar | @ping replies ↩️
That sounds like POTS
But definitely go to the GP and see a Cardiologist.
We also have pot but we have severe presyncope
POTS*
No, we do not have ||w33d|| XD
But we do have a flower pot
Very unrelated but you get the gist of it
idk when but we (/sys, us and you all) talked one time and comes out we do probably have presyncope. and its not new to us. and yeah one time i said that to my gp, that made me do appoinments for ECG but and ECG holter, but comes out nothing to worry him. when came out ts, my neurologist suggested a cardiologist too, and i’ve done a general appointment + ecg. but i feel like came out nothing, and its not what i wanted to. so yeah i feel like sh1t but idk if i will be taken seriously. i will tell my neurologist, instead of my “granpa <you’re fine>” gp. maybe he will worry and suggest something to ask to my gp. hoping the best..
Yeah thats common with neurologists.
Leo (they/he) |☀Solar ↩️
Cardiologists*
wtf my brain
Anyways Cardiologists have a habit of not knowing about POTS.
Ask for a Tilt Table Test
POTS generally won't show up on other tests
So ask to get a Tilt Table Test
As well try drinking Gatorade and getting compression socks and moving around more slowly
Anything with lots of electrolytes are lifesavers
barren lodgeBOT
thank you so much, i’ll do these things. tysm <3
(if anyone want to add anything you can, anything is appreciated <3)