fickle bronze
I hate the word "psychogenic" now. All my doctors have diagnosed me with FND and despite therapy, I have been getting worse. I just wish there were a way to scream into their faces all the atypical symptoms I'm having. And yes, even my bestest of parents sometimes act like they don't believe me.
I have bad tingling on only one side and bilateral headaches with a possible CSF leak problem. I feel sick.
I have a pediatric neurologist appointment Thursday. It feels so far away.
They said FND was a diagnosis of exclusion, but they only gave me a EEG and a not-so detailed physical exam. No scans or anything.
EEG was normal, even though I was jerking. The tech didn't measure my head, despite there being a visual chart next to my bed.
There MAY be a option to do a video EEG at a unit, but that's a whole lot of days in one hospital.
I have these jerks frequently.
waxen crag
How long was the eeg you took? Was it take home?
fickle bronze
How long was the eeg you took? Was it take home?
According to my record. 29 minutes.
But I took Ritalin and other stimulating substances, which is probably my fault.
I take Ritalin for ADHD-like symptoms
waxen crag
I recommend a take home. That way they get 24 hours of information including when you sleep. It also comes with a video camera you can set up if you’re in the same place for a while. I’m not sure if you would be offered it but definitely try asking about it if you think the results a short one got you weren’t that good. When I got an eeg, the readings of the short in-hospital one gave much less info than a full 24 take home one
fickle bronze
I recommend a take home. That way they get 24 hours of information including whe...
Should I ask for a video EEG?
That would be I'll be in a hospital for a while
waxen crag
I mean if you’re fine laying in the hospital for the entire day. The nice thing about the take home is that you are in a more comfortable environment. You can just go around your day doing whatever, then go to sleep in your own bed with quiet. They normally give you a camera that’s really easy to set up as well. I mean, in my opinion it’s much better than being bedridden in the hospital for 24 hours, especially as it’s a much more noisy environment